Neale Daniher co-founded FightMND in 2014 after being diagnosed with the disease a year earlier. Photo: FightMND.
Former Essendon and Melbourne AFL legend and FightMND founder Neale Daniher has died aged 65 after a 13-year battle against motor neuron disease (MND).
Born and raised in West Wyalong, Daniher played 82 games for the Bombers from 1979 to 1990 before making the switch to coaching in 1992.
He was perhaps best known as the long-serving head coach of the Melbourne Demons, whom he guided in 223 games from 1998 to 2007.
In 2013, he was diagnosed with MND, an incurable condition that affects nerve communication with the brain, ultimately leading to the weakening of muscles throughout the body.
Following his diagnosis, Daniher co-founded the charity FightMND, which has raised more than $115 million for research into the disease. The charity’s most notable project is the Big Freeze, a yearly event held at the King’s Birthday AFL game between the Demons and Collingwood Magpies, which sees a select number of celebrities dress up and plunge into a pool of ice.
Each year, FightMND also releases a line of beanies to support the event. The event is scheduled for its 12th iteration in two weeks’ time, at 3 pm on 8 June, and will be televised on Channel 7.
In 2025, Daniher was named Australian of the Year for his work with FightMND.
The Daniher family confirmed his passing on Monday afternoon, revealing that he died at his home surrounded by his family.
“We’re heartbroken to share that our much-loved husband, Dad and Poppy, Neale Daniher, passed away at home, surrounded by his family,” the family statement said.
“From day one, Neale was a fighter. His determination was unmatched — choosing every day to find opportunity where others might see only challenge, and taking the fight to the Beast with everything he had.
“Even in the toughest times, he kept pushing forward, determined to land as many blows as he could against his toughest opponent, all with a cheeky grin and a sharp sense of humour that never left him.
“Long before MND, Neale had always been the heart of our family. Growing up as one of eleven children, he brought light and laughter wherever he went.
“He loved deeply and was loved just as much in return by his family and friends.”
The Daniher family thanked everyone who had supported Neale and his fight against ”the Beast”, which is how he would refer to MND.
“We want to thank the incredible community who stood beside Neale and our family throughout this journey,” they said.
“Your support, kindness, and unwavering belief meant more than we could ever put into words. Neale drew great strength from knowing he was never alone, and neither were we.
“We are so grateful to the incredible carers, nurses, doctors, researchers, and specialists who supported Neale and our family with such dedication and compassion. Thank you.
“Neale’s fight was never his alone. It became something bigger — something shared — and it touched the lives of many.
“His wish was simple but powerful — to help create a world where no one has to face this disease. But beyond that, he wanted to leave a legacy that says this: No matter the odds, no matter the diagnosis, we all have the power to fight, to smile, and to do.
“Because the mark of a person isn’t what they say, it’s what they do.
“We will forever remember him for the lasting impact that he has made on us all. He has inspired, he has loved, he has lived, and it would only be fitting to finish with his words — ‘Play On’.”
Original Article published by Jarryd Rowley on Region Canberra.
